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(posted November 2, 2023). Hi! My name is Clara Von Feldt, and I grew up with 22q deletion syndrome also known as velo-cardio facial syndrome.

So that made me want to do a blog website to show that young adults are just as important and that the syndrome doesn't magically disappear when you get older.

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Jun 11, 2024 · Detect. Know. Grow. The International 22q11.2 Foundation is a nonprofit organization dedicated to supporting the needs of families and ...

Dec 1, 2019 · The deletion occurs near the middle of the chromosome at a location designated q11.2. 22q11.2 deletion syndrome has many possible signs and ...

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May 9, 2024 · The major clinical manifestations of 22q11.2DS include congenital heart disease, particularly conotruncal malformations (ventricular septal ...